Public involvement
Hayley Reed (DECIPHer), Dr Ruari-Santiago McBride (CoEfPHNI), Dr Mark Tully (CoEfPHNI) and Helen Elizabeth Brown (CEDAR)
11.00, Wednesday 10 July. Hospitality Suite 93, level 5
Public involvement in research is defined as an active process where research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Advocates of public involvement believe some of the best research involves those who are affected by its outcomes, as the public can provide 'knowledge in context' which is different but equal to that of scientific experts. Within health research, the most commonly cited public involvement model has been proposed by Hanley and colleagues and delineates three levels of public involvement; consultation, collaboration and user control.
This workshop will commence with three of the workshop facilitators presenting a short case study example, one of each level of involvement, to the group. The case studies will include: Ruari-Santiago McBride showcasing his consultation work with community members and with prisoners; Hayley Reed showing how she facilitates ALPHA, the young people’s research advisory group; and Dr Mark Tully detailing a project which involved local community members in data collection.
The second part of the workshop will focus on the barriers and facilitators of involving the public in research. This will take the form of small group discussions with half the participants discussing the question ‘What do you need to make public involvement a reality (the facilitators) and do you know any ways to obtain these facilitators?’, and the other half discussing ‘What challenges are there to undertaking public involvement (barriers) and how could you overcome these?’. Time will be allocated for groups to feedback and for questions to be posed to the facilitators. Participants will not need previous experience of involving the public or to do any advanced reading.
This workshop will commence with three of the workshop facilitators presenting a short case study example, one of each level of involvement, to the group. The case studies will include: Ruari-Santiago McBride showcasing his consultation work with community members and with prisoners; Hayley Reed showing how she facilitates ALPHA, the young people’s research advisory group; and Dr Mark Tully detailing a project which involved local community members in data collection.
The second part of the workshop will focus on the barriers and facilitators of involving the public in research. This will take the form of small group discussions with half the participants discussing the question ‘What do you need to make public involvement a reality (the facilitators) and do you know any ways to obtain these facilitators?’, and the other half discussing ‘What challenges are there to undertaking public involvement (barriers) and how could you overcome these?’. Time will be allocated for groups to feedback and for questions to be posed to the facilitators. Participants will not need previous experience of involving the public or to do any advanced reading.